Rare Disease Day Events - Find One and Join Up!


Thursday is the sixth annual international Rare Disease Day, a day to raise awareness amongst the public and decision-makers about the challenges faced by those with rare diseases. In the United States, a rare disease is defined as a disease that affects fewer than 200,000 people. There are over 6,000 identified rare diseases and nearly thirty million Americans suffer from one.

There are numerous events being held across the country on Rare Disease Day. We encourage you to find an event near you and help create momentum behind a day that will make a difference in the lives of patients and families around the globe. Find a local event here.

This year's Rare Disease Day slogan is "Rare Disorders without Borders," which highlights the need for international support. Check out the official Rare Disease Day video below.